AADPA is proud to launch A Guide for Participatory ADHD Research—a free resource designed to support meaningful collaboration between researchers and people with lived experience of ADHD.
Developed over an 18-month period by AADPA’s Research Committee, the guide provides a practical framework for embedding lived experience throughout the research process—from identifying research priorities and designing studies through to interpreting findings and translating research into practice.
Grounded in the principles of participatory research, the guide recognises that research is stronger, more relevant and more impactful when people with lived experience are genuine partners in the research process. Rather than consultation as an afterthought, it promotes respectful collaboration, shared decision-making and meaningful involvement at every stage.
- practical advice for researchers and community members
- guidance on different levels of lived experience involvement
- participatory research frameworks and models
- real-world case studies and lived experience perspectives
- practical templates and resources to support implementation.
We invite researchers, clinicians, organisations, students and community members to download the guide and join us in strengthening ADHD research through more inclusive, respectful and meaningful partnerships.
This guide was developed through a partnership between researchers and people with lived experience of ADHD, reflecting the collaborative approach it advocates. We sincerely thank everyone who contributed their expertise, insights and lived experience to this important project.
Citation:
Brown, L. E., Pugsley, K., Staniland, L., Friedel, E., Moses, M., Le, H. N. D., Scorgie, T., Agius, A., Gallen, A., Hurst, D., & Silk, T. (2026). A Guide for Participatory ADHD Research. Melbourne: Australasian ADHD Professionals Association
Download The Guide
Complete the form below to receive your free copy of A Guide for Participatory ADHD Research. We’ll email the guide to you for easy access whenever you need it. If you have lived experience of ADHD, you can also choose to register your interest in contributing to future research projects by sharing your lived experience perspective.
